Monday, September 27, 2010

The Drive by Carbing Incident

It was one of those nights. The kind of night when you look at the clock and see it’s 4:45 and you have nothing planned for dinner.

Options were weighed. Dialog was flowing. Ideas bounced off. And decisions made.

The decision? My husband, my SIL and my oldest 3 boys would ride their bikes 3.1 miles down the road to a restaurant that I had a killer coupon for. L and I would hang back. I would take L on his scooter for a 1 mile loop around the house, and then when we got back we would drive to meet the fam at the restaurant.

It was a good plan.

It was a plan hatched with the best of intentions.

As I left with L out the door I yelled back for everyone to check their sugars before leaving. J was on his way to “The Station,” (my nickname for the hallway cupboards and counter where we keep the boys supplies,) so I felt pretty comfortable about leaving.

You caught that right? I saw J heading to the station…not B. But why would I worry? I totally knew my husband had this.

Unfortunately…my husband totally knew I had it.

When L and I got back from our loop I got an upsetting phone call from my SIL.

“B feels low. He is sitting on the side of the road and he’s pretty upset. I got nothing on me.”

Before I go any further you should know that my SIL ALWAYS has SOMETHING on her. She carries a blood sugar monitor and fast acting carbs in her purse at all times…yeah, she is that great. No kidding, she’s a regular Mary Poppins. But on this day…she didn’t have her purse with her. She had nothing. B wasn’t moving. He knew he had to stay put, and they were by the post office in the industrial district…not a store within a mile or so.

L and I hopped in the car and took off.

I was almost there when my SIL called again, “Are you close? B is crying now.”

Crap. He’s scared. My entire existence axises on keeping my boys NOT scared. And there B was, on the side of the road, frightened. No monitor. No sugar. Feeling all the crap a low has to throw at him…worried for his sweet little life.

Crap on a stick. (Who says that? One of the blogging Mama’s says that.)

It was like a bad drug deal. On the open road…a car drives up and rolls down the window and hands over the goods to get someone high. I wanted him higher. I wanted him higher now.

I was in a no parking zone on a busy street, shunking my son with a needle and giving him the goods to get higher.

The craziness of the moment didn’t escape me.

He drank his juice. He ate his Yogo’s with frenzy, and then stopped long enough for me to check him.

52.

He waited awhile and insisted finishing the trip on his bike.

Diabetes wasn’t going to scare him into stopping. He had all the tools he needed to be safe now; He was ready to go.

As I watched him bike down the road, the title of the country song, “There Goes My Life” popped into my head.

There he went, my entire life. My everything.

We work so hard to keep our kids safe. But we work just as hard to make them FEEL safe.

Let me keep the fear.

Let me nurse the worry.

Let him…just be a kid.

Friday, September 24, 2010

A Few of My Favorite Things WINNER!!

Dearly beloved
We are gathered here today
To get through this thing called, “blog”

Electric word, “blog”
It means forever and that’s a mighty long time
But I’m here to tell you there’s something else,
THE GIVEAWAY!


Yup, Prince. (Is he Prince again, or The Artist Formally Known as Prince?) Anywho, his song woke me up this morning and these lyrics from “Let’s Go Crazy” have been replaying in my head for the past hour. I figured the only way to get rid if it was to lay it out on my blog like I do with everything else. That is how I roll. Crossing my fingers I don’t drive the kids crazy with Prince Raspberry Beret during breakfast.)

So I know you all have come to find out the winners of my Few of my Favorite Things Giveaway! And you know what, I am happy to oblige!

Two winners!! Two Prize Packages!! Good luck!!

And winner number one is:


#44
Stephanie! From My Life as a Pancreas!!! Total serendipity! Her son was just diagnosed with Type 1 on August 31st. She is new to blogging so go send her some love! Congrats Stephanie, and welcome to the DOC!

And winner number two is:

#60
Heather! From, Sweet to the Soul!! Heather is a mama to three beautiful girls. Her 4 year old daughter was diagnosed April of 2009. Congratulations wonderful Heather!!

Girls, you have 48 hours to contact me by email at ourdiabeticlife(at)yahoo(dot)com. If I don't hear from you...another winner will be selected. :(

Thanks to all who entered. It was such an awesome surprise to have over one hundred entries! Please come by to visit again! Now that the contest is over, I have many things to blog about, not the least of which is a drive by carbing incident I was involved in…

Sending all my love to the DOC. You are my sanity all rolled up in one computer screen. Thank you for understanding me, laughing with me…and supporting me.

You inspire me everyday. Thank you!

NOW! There is a new giveaway/SUGAR BOLUS on the block!! Go to HALLIE at the Princess and the Pump NOW!!! Horray! More free stuff!! Go on, get outta here, and win something already!! :)

psst....wait...are you still here? Also go to Heidi at D Tales Blogger Basal for the month of September. A nice run down of what has been goin' on with our blogging peeps!

Friday, September 17, 2010

A Few of My Favorite Things GIVEAWAY!

THIS GIVEAWAY IS CLOSED
I feel like Julie Andrews with a dash of Oprah thrown in! I am pleased as punch to welcome you to the epic Our Diabetic Life/Sugar Bolus/A FEW OF MY FAVORITE THINGS GIVEAWAY!

I have two prize packages up for grabs. Each of them including something special from three of my favorite things ever!

Let’s start with curtain number one!

CONTIGO KIDS TREKKER MUGS!


We have been using Contigo mugs for years. They are amazing for a variety of reasons, not the least of these being they do not spill! Not one drop! They are good looking, durable, spill proof, ingeniously designed and they are BPA free. We use them on the boys’ desks at school, at soccer games, in the car, at church, and around the house. Seriously, these cups SAVED my carpets back in the old days when we drank A LOT of RED sugar free cool aid/crystal light. (That stuff does not come out of carpets. EVER.) Carpet staining catastrophes led me to buy a few of these…and ever since, if you want a drink in your room by the bed, grab a Contigo. In the car? Grab a Contigo. I even sent some to both grandparents house so we wouldn’t have to worry about spills. They make these for adults too. We have a few other varieties that they sell as well. Take a look at their website HERE…you will fall in love instantly!

Two winners will get TWO of these cups. Thank you Contigo for spreading the love to the Type 1 Community!

Behind curtain number 2?

Spibelts!!



We have used many different belts/hooks/pockets for the boys’ pumps…and by far they favor these. I think the win is in the simplicity. My boys are no fuss kind of guys. They want something simple, comfortable and something that does the job well. They want to run with their pumps on and not have to worry about it flapping in the wind, or falling off. These belts do the job beautifully. L and B both PLAY their soccer games with their pumps on! Only because they can with these belts. The pumps are held close to their bodies and it doesn’t even bother them. The material is stretchy so they can also throw some fast acting sugar in the pouch if they want to. My Junior High guy just puts his pump in his pocket, but we quickly found out this wasn’t an option during PE. (No pockets in the PE shorts.) He uses the black Spibelt with the blue zipper now and is EXTREMELY happy with it because it is held so close to his body, no one notices…and he can run freely…huge plus!

As part of the prize package, our two winners will get to pick out any Spibelt they want HERE. Check it out, buy one…because they are uber affordable…and then try to win another one here. My younger boys have a couple each to switch back and forth from! (You can also use them to keep your cell phone, keys and ipod in...they are great for your workouts!)

Thank you Spibelt for sprinkling kindness towards the readers of Our Diabetic Life!!

And curtain number 3 dear friends?

A gift certificate from Medic Alert to enroll your child in the KID SMART program! This will register your child for one year with the company as well as pay for a Medic Alert bracelet. There are several to choose from within the program, below you can find a few examples of what they offer. The cost is very affordable, and the peace of mind is priceless!





We have used Medic Alert for the past 12 years. It feels good to know our children's medical records are immediately available to emergency responders to help with their treatment decisions. Their 24-hour emergency identification services help identify children who are involved in emergencies or lost. With a phone call, a doctor can know all the important information if I am not there. Emergency responders can find out the boys’ Endo phone number, the insulin we are currently using, the boys ratios, and find out what allergies my children have. You can change the information online, it is easy to do…and it gives peace of mind especially now that we are not at the boys sides 24/7. You can read more about the Program HERE.

Come on…AWESOME, right? Thank you Medic Alert for your life saving gift to my blog reading Peeps!

THE OFFICIAL RULES:
THIS GIVEAWAY IS CLOSED
To enter the contest and win one of the two prize packages:

● Leave me a comment before midnight on Thursday, September 23, 2010. Please include your first name. Comments left without a name will be eliminated.

● To earn extra entries (post a separate comment for each):
* Tweet about this giveaway on Twitter. Then, leave me an additional comment
containing a link to your tweet.
* Share a link to this contest on Facebook. Then, leave me an additional
comment to let me know.
* Blog about this contest. Then, leave me an additional comment containing
a link to your blog.

● No duplicate comments are allowed. Duplicate comments will be eliminated.

● Winners will be selected via random draw at http://www.random.org/.

● Winners' names will be posted here on this blog on Friday, September 24, 2010.

● After winners' names are posted, winners will have 48 hours to send a message to me at ourdiabeticlife@yahoo.com. If I do not hear from a winner within 48 hours, I will select a new winner.

Remember, to enter you must leave me a comment with your first name before midnight on Thursday, September 23rd.

GOOD LUCK! I SO hope you win!

Wednesday, September 15, 2010

An open letter to those who are worried about diagnosis #2.

For those that have the worry tucked in the back of their mind…for those who think that maybe a second child is on the type 1 road, or even has just had a second child diagnosed…this letter is for you.

Dear Parents,

I’m already crying.

Dear Parents,

First, breathe. Everything is going to be just fine. I know the fear of this coming to fruition is consuming, and I don’t want to minimize the gravity of the situation, but let me tell you…100%...all is well.

We have 3 Type 1 children, and people think we are some kind of amazing. They think we have super powers to be able to deal with 3 diabetic children.

“I don’t know how you do it!” They cry.

“I am in awe of your strength!” They cheer.

“How do you stay so positive?” They wonder.

Let me tell you, there is NOTHING extraordinarily special about our family. We are not superhuman. We survive life with 3 T1’s, and through it all we manage to thrive. We are as normal as it gets, and yet we are happy and blessed. Not because we are stronger than other families…just because it is what it is. You will be just as strong. I promise you will.

The initial mourning process is important. I understand that this is not the life you want your child to have to live. I know deep down you feel guilt. I know in some crazy illogical way you feel it is your fault. Maybe you feel like God is punishing you, and your children have to bear the burden. There are many stages to the madness, but eventually the dust will clear and you will feel alive again. Because what gets you through, are your children. Despite what life has thrown at them, their resiliency will be a beacon of light to your family. You will see them happy and full of life and it will fuel the fire of contentment in your heart.

Our family has been living with Type 1 for 12 (UPDATE:16) years now. We have gone through the hard baby times, the impossible growth spurts and have found a plethora of foods that wreak havoc on the boys’ blood sugars. It isn’t always easy…but eventually there is a rhythm…a drum beat that you will follow. Life is very much the same as it is with one Type 1 child. You are already counting carbs for the meals; you just do it for two. You are already checking sugars in the middle of the night…you just do it twice. The worst part is getting over your grief. Young children will get over it almost immediately. Grieve for awhile…as long as you need to! But don’t let the grief eat you alive. It is like acid to your heart.

Breathe, and live. One day at a time at first. Try not to let your brain skip ahead. Live today.

My boys have an incredible bond because of the trials diabetes hands our family. Having a brother or sibling next to you who KNOWS what a low feels like, who KNOWS that when you’re high you just want to punch something, who UNDERSTANDS your deepest thoughts and feelings? Well, that is just a gift.

Love prevails despite diabetes.

Happiness wins despite the daily grind.

The reason I cried at the beginning of this letter is because I know how much you are hurting right now. (Here come the tears again!) I am crying because I have been in the depths of despair…I know the fear, the grief, the terror of it all. But here I am, on the other side telling you that one day you won’t cry anymore. (Well, not everyday anyway.) We have our hard days, but most days…we get through like any normal family would. Sure, we do our blood sugar checks and there are calls from school and extra supplies to pack when we walk out the door…but for the most part we accept our family’s path, and you will too. You will be grateful for the closeness of your family, and the amazing character of your children. Yes, Diabetes changes them, but from what I have seen it only makes them more amazing. We are a pretty normal family yes, but our children...they are the ones everyone should be giving their awe to. They nothing short of incredible!

((HUGS)) to your family.

All is well. All is well.

Much love,

Meri and Family

Monday, September 13, 2010

Me...ME...MEEEEEE!

I am rockin this meme courtesy of HOUSTON WE HAVE A PROBLEM…who was tagged by, MY DIABETIC CHILD…who was tagged by I AM YOUR PANCREAS…who was tagged by, BETA BUDDIES…who was tagged by A SWEET GRACE who accepted the meme challenge from SIX UNTIL ME…

Thanks Laura, I owe ya one. ;)

What type of diabetes do you have:

My three youngest boys have Type 1 Diabetes. (And thankyouverymuch for asking which type it is!)

When were you diagnosed:

J was diagnosed on August 4, 1998 at the tender age of 8 months old.
L was diagnosed next in on February 12, 2005 when he was 2 years old
B was diagnosed next June 2006 when he was 5. (Caught so early, he wasn’t ‘official' until August of that year.)

What's your current blood sugar:

J is 82
B is 76
L is 118
(I know this sounds wonderful, but they are just going to bed and this means two checks tonight instead of 1. Isn’t diabetes fun?)

What kind of meter do you use:

We mostly use the OneTouch UltraMini’s. We use these because A) Our insurance covers the strips, and B) They come in awesome colors, and my boys think awesome colors are fun. Anything to make diabetes fun is Ok in my book! We also use the OneTouch UltraLink Meters at school. These meters beam the numbers to the boys’ pumps so there is no keying error on my little guys part.

How many times per day do you check your blood sugar:

On a really good day each boy gets checked 8 times. That is if Lawton does not alert, and if they are not ill. A normal day probably is 10-12 times per boy. That would be 30-36 times a day for you math enthusiasts.

What is a "HIGH" number for you:

The boys know that anything over 200 is high, but we don’t “call” it high unless it is over 300. We try to keep things positive around here. If they have a blood sugar in the low 100’s they ask for high fives because they know that is what we are shooting for.

What do you consider "LOW":

Anything under 70. L, our littlest one calls anything under 100 a low.


What is your favorite low blood sugar reaction treater:

Apple Juice for under 60’s
Yogos for 60-90
VANILLA pudding at night when they are between 60 and 90.


Describe your dream endo:

I think we have her. She was a fellow at UCSF Standford medical center, so she is a smartie. She has worked with us since J was diagnosed as a baby, so she knows us. She always listens to what I have to say first, so she listens well. She usually agrees with me, so she trusts us. She sometimes has ideas I never thought of…and they are positive ones, so I trust her. AND she is reachable at all times. If I can’t talk to her, I talk to our CDE and she will consult directly with our wonderful endo before giving me advice. The only thing that would be dreamier...is if her office was in town, and not in the city.

Who's on your support team:

My husband (My partner in crime. Always willing to lend a hand. Expert and super fast site changer.)

My SIL (She is amazingly adept in taking care of the boys. I can honestly throw the boys at her and leave for a week, and she could take care of their needs. The only thing she might need help with is site changes, but now that J can do his own, we are good to go.)

My MIL (She cooks for us. She drives the boys to school. She is always there for me if ever I need her. She is always positive and willing to lend a hand.)

My parents (They have us over once a week, and are willing to lend a hand if I’m ever in a pinch.)

My endo: (See above)

The DOC (You are my saving grace. You saved my brain. You lift me up. You get it. Same.)

Do you think there will be a cure in your lifetime:

Because I am a mother…and I have to watch my children suffer…even if they are happy and don’t even know that they are suffering…even so…I hope there will be a cure. Part of my brain is not expecting a cure…but another part of my brain believes in miracles. If God has plans for a cure…then it will happen, and I’m AOK with that!

What is a "cure" to you:

No machines.
Drinking a glass of orange juice and not giving it a second thought.

The most annoying thing people say to you about your diabetes is:

After 12 years dealing with disease, I have honestly heard it all. But the worst by far was at the park one day. I spent a good hour talking to a mother who happened to be a nurse about the boys and their trials. The misconceptions, the hard work that is put in, the sleepless nights…she asked questions, she listened, she was so nice! Then as we parted I said, “Yeah, you just don’t know who is going to get it. Many people don’t even have it in their family history.” And then she said as she walked away, “That is why we are really careful about what we put in the kids lunches, I don’t want to worry about it ever.”

WTH? Did she even LISTEN to a flippin word I said??? An hour of my life I’ll never get back.

The most common misconception about diabetes:

That there is only one type. That there is just “Diabetes.” (Climbing on my soapbox) There really is no such thing as “Diabetes.” There is “Type 1 Diabetes” or “Type 2 Diabetes” or “Lada Diabetes.” No one has just plain ol diabetes. Newspapers like to lump it together. They always talk about “Diabetes” and the causes of it, which are always outlined with Type 2 causes. If you are speaking of Type 2, say Type 2. (Yeah, I don’t have issues or anything…)

If you could say one thing to your pancreas, what would it be:

What the hell?!

Now I get to tag someone…FUN FUN FUN!! Who do I think would love some fun?
Why WENDY of course!



Tag Wendy…you are it! MUA!

Friday, September 10, 2010

The Angst-iness of Back to School

It is the beginning of the school year and the posts about diabetes at school are everywhere. In Blog Land, on Twitter, on Facebook…

There is a lot of angst out there and I don’t find myself immune to it.

Yes, J is taken care of at the Junior High. He has awesome adults keeping an eye out, and I am completely at peace with him leaving in the morning for 6 hours. But, the reason it’s so awesome is because J takes care of himself. He does his own checking, his OWN correcting. The only people with a handle on his numbers are me and him.

Which leads me to the problem I am having at the elementary school level with B and L…and I’m going to go out on a limb and guess that my problem is close to the very core of everyone else’s back to school angst…

Judgment.

Some have amazing nurses that have dealt with T1 and GET IT. But most of us don’t. Most do not have nurses that really understand Type 1 in children. Heck, many of us, including my boys, don’t even work with a nurse!

Regardless, in most cases there is someone, who does not get it, looking at our children’s numbers and JUDGING.

Case in point…

L is still really little. He is 6 and is tasked with checking his own sugar and then calling me twice a day with the numbers. We have him set up with an old cell phone of which he presses the number 2 and the phone magically dials me. He reports to me his numbers…and apparently, his teacher too.

The other day our snack conversation went something like this.

“Hi mom! I’m 302 and if I get to 400, my teacher says you better come pick me up! Bye!”

(Ummm…yeah…our conversations only go one way.)

But seriously…I felt judged. I always do.

Yesterday his teacher called personally because he was low. He was 56, and she wanted to know exactly what to do.

Did she say anything to me to make me feel bad? No, she was very nice. But did I feel bad anyway? Yes.

Because as great as she is, she just won’t ever get it. (Because really, you can’t get it without living it…or REALLY wanting to get it…and honestly she is too busy to be invested in such a huge endeavor.)

I’m not knocking teachers or nurses or secretaries, or whoever is helping our little ones. It’s just when a number isn’t what we hope it to be…they don’t understand that we put all our time, effort and worry into that number and our heart aches because of it. They don’t understand that the number is NOT your fault…it’s the diabetes fault. They just don’t understand.

And as a result, I feel judged.

And as a result of feeling judged, I feel angst.

And as a result of the angst, I wrote this post.

And as I’m writing this post, I have a feeling that many of you will agree, because sometimes our best human actions are not the best pancreatic actions. WE know we are doing the best we can…but do they?

They probably don’t. And feeling that these people don’t think you are doing the absolutely best you can for your child is a heartbreaking, anger inducing thing. Last year I felt so judged by L’s kindergarten teacher that I sent her a three page email explaining diabetes and that numbers cannot always be between 100 and 120 for a 5 year old. Even though she called me and was so kind about it all…I still felt that pang of judgment for the rest of the year.

Is it their fault?

No.

Is it my fault?

Maybe.

Are they even really judging me?

Hell, I don’t know for sure…but probably, everyone does it...I mean; I’m judging their judgment right now!

Regardless…it is just one more guilt trip that I don’t need. I feed myself enough guilt as it is.

School brings the worst of my insecurities out. I think maybe that is why I’m so obsessed with getting good A1C’s. I can say, “Yeah…you don’t see it, but my endo says he is doing perfectly. His team is very pleased with his numbers and lab results.” (Seriously that was my fallback all last year.)

So where am I going with this. I don’t know people. All I know is I wanted to get the ugly truth out there:

I put blood sweat and tears into keeping my boy’s numbers in check…and the thought that someone at school may think I can do better…work harder? Well, it makes me feel like I’m in elementary school again. My feelings get hurt and I just want to collapse in the sandbox and cry.

Thursday, September 9, 2010

Last Chance to win at Candy Hearts Blog Giveaway!

This is your last chance!! Your very last day to win AAAAAAAAAAAAAwesome stuff at Candy Hearts Blog!

Seriously...you have until midnight!

You can win TigTagz (If you don't know what they are...POP OVER!)

And there is some Tally Gear up for grabs!

All you have to do is leave a comment. (Read her rules) But honestly...easy peesy!

Sweet Mrs. Candy Hearts will declare a winner tomorrow!

And in another week yours truly will be announcing a giveaway of epic proportions...Okay, maybe its not epic...but its close. :)

Whatcha waiting for? Go enter now at Candy Hearts!



Wednesday, September 8, 2010

T-Minus Three Weeks to Endo...

There is a humming. A constant humming and it won’t go away.

It is a bit reminiscent of the Edgar Allan Poe story, “The Tell Tale Heart.”

I mostly hear it when the house is quiet. I can hear it right now as I type this.

mmmmmmm mmmmmmmmmmmm mmmmmmmmm mmmm

It isn’t the refrigerator.

It isn’t the lights. Honestly, I have every one turned off.

I think it is me going mental from all the stress.

Our endo appointment is in three weeks. You know what that means? Every single number from this moment forth will be downloaded and analyzed. And I’m accountable for them all. Hence the rage basal changes last night on ALL three boys.

mmmmmmmm mmmmmmmmmmm mmmmmmmmmmmmmm

Maybe it is the blood sugar monitors calling to me. They are saying, “Erase our histories! Start over!”

Whatever it is, it does shed light on the fact that I’m in a funk. The A1C tests are looming. All those A1C’s in the 6’s are going to be gone…those victories are now stored away in dusty boxes. All that matters is right now, and right now the boys’ blood sugars have gone out of whack.

It is uncanny how all three boys’ basal rates can work in unison.

Maybe that is what the humming is…their bodies basals communicating with each other…saying “More insulin! More insulin! More insulin! mmmmmmmmmmmmmmmm mmmmmm.”

In two hours I will get a call from two boys, and a text from a third. They will report in with their blood sugars and I will know if my changes were positive ones or not. Until then I will sit here and listen to the hum of insanity and try to remember that those numbers are just a map for me to find my way to a treasure trove of “In Range Numbers.” I’ll also try to keep in mind that I am doing my best…and hope beyond hope that my best isn't as sucky as I think it is.

Thursday, September 2, 2010

Miracles on Jr. High Street

Sometimes, a miracle happens and we think…”Is this a miracle? Or just a CRAY-ZY coincidence?”

Sometimes it is so obvious it’s a miracle we are dumbfounded, and just don’t know what to think.

J starting Jr. High has brought so many miracles that I am seriously dumbfounded.

Me! Dumbfounded!

That just doesn’t happen people.

The definition of dumbfounded is: To be struck dumb with astonishment and surprise.

Yeah, not me.

But nonetheless I have finally found the words to blog about it.

It all started when J got his schedule for Jr. High. Our Jr. High is a pretty big school with many different wings. When my son M attended he was running from one end of school to the other…barely making classes and exhausted at the length of his walk.

But not J.

All of his classes are in ONE WING!

Again: One. Wing. (Well except PE in the gym…but all the others…ONE>WING>

Seriously, unheard of. Even his teachers at his 504 meeting were perplexed how that worked out.

So that was miracle #1.

Miracle #2 came during his 504 meeting. I was discussing his accommodations, excited and surprised everyone was amazing and on board…I got to the glucagon and nonchalantly showed them how it worked. I told them how it was SO no big deal and then went on to ask who would like to try a shot. Mrs. N raised her hand. “I’ll be the glucagon person. My classroom is right in the middle of his other classes, and I have 2 daughters that are Type 1.”

WHHHHHHHHHHHHHHHHHHHHHHHHHHHHHAT!

Her daughters are in their 20’s now, but they were diagnosed at ages 4 and 6.

I don’t care what you say…THAT is a miracle.

The next miracle came on the second day of school. J’s PE teacher wasn’t able to attend the 504. Yeah, not cool. But the councilor said he would let her know that she needs to meet with me asap. J didn’t have PE on the first day of school, because they are on a block schedule. 1st-3rd period on A days. 4th through 6th period on B days. The second day of school he walked into gym and sat down.

This teacher explained that she is a High School gym teacher and is here at the Jr. High for just this one class. Then she went on to explain that she might be eating during class because SHE IS A TYPE 1 DIABETIC!!!!!!!!!

Holy SHAMOLIE!!!!

After class J introduced himself, she gave him a high five and talked to him about his pump a bit.

Yesterday J had is first low during PE. They ran for over an hour non-stop and J knew he was dropping fast. He went up to his teacher and she told him that he never needs to ask; he can just go to the first aid box and grab whatever food he needs. After he ate he started to walk another lap and his teacher ran out and stopped him. She told him there were only a few minutes left of class and he should get some water and sit to get his blood sugar up.

Believe in miracles much?

I do.

Wednesday, September 1, 2010

Diabetes Art Day: A Late Submission

I wasn't planning on participating in Diabetes Art Day. Not that I didn't WANT to. I just knew we wouldn't have time this week to create, so I planned to sit this one out and enjoy everyone else's creations.

But this morning when I was doing my rounds, cleaning the house...I came upon this little sculpture. I took a picture as is. No rearranging. No planting specific items. Nope, this is what was sitting in our hall "Blood Sugar Station."

Art in its rawest form.

I call it, "A Long Night"


A picture really is worth a thousand words.

Monday, August 30, 2010

Take a second look

The blond boy that you treat as you do…
The one you don’t give a second thought.
He was diagnosed when he was two
You can’t imagine his life’s lot.

His smile is contagious
His laughter full of the sun
He hops and skips and runs and jumps
Yet his world has come undone.

He pokes his fingers 8 times a day
Brown speckles mark each spot.
A needle inserted into his flesh
You would think he’d complain a lot.

But when he does this daunting task
His eyes twinkle with delight.
He knows it’s a grown up thing to do
He only wants to do what’s right.

A two inch needle we insert
Into his little hip.
We do this a few times a week
To attach his insulin drip.

Most children at that needles sight
Would cry and gnash their teeth
But not our boy, he’ll just close his eyes
And hold in all the grief.

He wears a pump around his waist
It’s there for all to see
He doesn’t notice it in his hast
No complaints from him, just glee.

He wants to make his family laugh
He knows the burden that they bear
He’s never thought to think of himself
And the work it takes for his care.

The lows come quickly and his body fails
He falls to the ground with no life
His eyes half mast he asks for food
Sorry to give his mother strife.

And then the highs make his stomach hurt
His heart starts beating fast
He has to pee and can’t think straight
He scrambles for his water glass.

But when the high is over
He snuggles at his family’s side.
He says he’s feeling better now
His sadness he tries to hide.

He has lived lifetimes of pain
And he is only six years old
But you would never know this to be true
His happiness is so bold.

Through all this, he’s a pillar of strength
A rainbow of hope for all to see
He is the sun on a stormy day
So here begins my plea…

You do not know what this boy bears
You do not know his strength.
You do not know he prays every night
For he and his brothers to be safe.

So when you see him, take another look
And marvel at his grace.
For he is a person to give your awe
There is more than a smiley face.

Put your hand around his shoulder
Tell him that you are proud of who he is
Look past his imperfections
He is an amazing kid.

Because:
He is more than diabetes
He is more than all the pain
He is more than a blood sugar number
He is the sun through the piercing rain.


L, Making his brothers laugh.

Wednesday, August 25, 2010

Worry Feet

My feet hurt.

When I wake up in the morning I can barely walk. My feet scream as soon as they hit the floor.

I’m pretty sure it is all the worry I keep there.

It seems this time of year my worry increases tenfold, and honestly, where do you think I should keep all this worry? In my swelly brain? NO WAY! I stuff it down…way way down to my toes.

I’m like a trash compacter when it comes to worry. My body fills with the worry garbage and I push the button and there you go! Feet stuffed with compacted worry! Stuffed so deeply that my feet ache from carrying around the worry garbage that no doubt is the weight of cement blocks.

Or it could be I need to stop wearing flip flops…

But I’m pretty sure it’s the worry.

No kidding, sometimes I am folding laundry during the day and I the thought pops into my head that I have 3 diabetic boys running around school and I have NO IDEA what their blood sugars are. I feel a pang of panic, but before it gets too bad I stuff it down.

Part of my Jedi D Mom training no doubt…

I’ve become a pro at stuffing it down. Seriously, I amaze myself.

I think to myself, “Self, you should be flipping out right now…kudos to you for pretending like everything is A Okay!”

Maybe it’s a conceited thing to do, but acknowledging the fact that I’m keeping calm and not freaking out is part of my coping mechanism. I let the worry flutter, and then I stuff it, and then I pat myself on the back and move on.

It takes practice, but in time, all D Moms and Dads can do it. You are probably doing it right now and don’t even know it! Come on, don’t your feet hurt just a little?

Problem with my trash compactor system is eventually the worry trash gets so full it fills my entire body and hits the brain. The only way to get rid of it then is to cry. Fortunately I can keep the mountains of garbage at bay with my blogging…so the crying is kept to a minimum.

I know my feet will lighten up soon…but right now if feels like someone is opening up my head and throwing worry in there like it’s an In and Out Burger Trash can. I’m stuffing as we speak people.

In the mean time to keep my mind off things, I’m coming up with some movie ideas…trying to get this beauty off the ground…

Friday, August 20, 2010

It’s the most flip-outiest time, of the year!

Hello friends. Welcome to Meri’s edition of, “August, should we just scrap it all together?”

I think July should be 62 days. Yes? Agreed? Because August always stinks. Seriously, look back at your blog…look back at your calendar…look back at your journal…suckity suck suck! Case and point, my post last year: Tsunami and EVERY OTHER AUGUST POST LAST YEAR! It’s emotional collapse time people. Batten down the hatches!

It’s back to school. It’s back to reality. It’s back to WORK! NO MORE RESTING YOUR BODY OR YOUR BRAIN! Let’s get moving! Blah! Blah! Blah!

It’s emotional…it’s hair raising…it’s finding a new routine…it’s educating teachers and nurses…it’s sports season…it’s a big FAT reminder that our kids have special needs, and our hearts break for them as they have to find their own “normal” in their new classroom. It’s everything July isn’t.

What can we do?

How can we ride that tsunami wave to the top of the mountain and declare victory?

We need a plan and we need one fast! Admitting there is a problem with August is the first step…now we need a healthy, grown-up, even way to handle all of this…

Any suggestions? And no, I don’t drink alcohol…so think of something else…quick! There are only 11 days of August left. If we don’t jump on this, August is going to swallow us whole!

Wednesday, August 18, 2010

Just so you know: I know I talk about my brain A LOT.


I went to bed last night with visions of last year’s Charlie Brown first day of school in my head. I was as ready as I’d ever be and yet I knew even with the best of intentions…IT can hit the fan. Regardless, when I did sleep, I slept HARD. I was exhausted last night and sporting a nice big fat head cold to boot.

The day went smooth as silk. Thankfully, I was able to meet with the boys teachers last night to go over emergency protocol and their daily schedule. L’s 1st grade teacher has had J and B, so we mostly just chatted. Her biggest concern was L communicating his lows…and since L is a pro at that now, all her fears were put to rest. B got a new teacher, one our family has never had…but B is awesome, so I feel good about it all.

The important thing is each boy had a stellar first day of school. Even though I feel like I’ve been hit by a Mac truck, and our family car is no doubt passed out in the garage from sheer exhaustion from our new commute…all is well.

I knew that moving our family into a better neighborhood was the right thing to do. I knew that being just a few blocks from my in-laws would be a blessing for sure. What I didn’t know is how much time I would end up spending in the car today. We moved to the East side, and kept the boys in the schools on the West side. My achy-breaky-head-cold-brain hates me for it right now.

A little lookie loo into my day:

8:00am: Leave for school
--------------------------------------------------------------------->

8:40am: Drive home
<--------------------------------------------------------------------
10:00am: Drive M to school. (Freshman orientation, my Sophomore got to start the first day late.)
--------------------------------------------------------------------->

10:15am: Drive to L’s school to show him the routine he’ll use to check his sugar at snack time.
<----------------------------------
10:25am: Drive Home
<--------------------------------------------------------------------
11:35am: Drive to L’s school again to support him through his new lunchtime routine. (I’ll do this tomorrow too, and then see how he does on his own Friday.)
--------------------------------------------------------------------->

11:50am: Drive to the store. Out of paper. (Paper of the copier and toilet variety.)
<--------------------------------------
12:15pm: Drive home.
<--------------------------------------------------------------------
1:15pm: Leave to pick up B and L from school. (They get out early this week.)
--------------------------------------------------------------------->

1:40pm: Leave B and L in their Omi’s capable hands, and head to Jr. High for 504 meeting.
-------------------------------------->

3:00pm: Pick up M from the High School.
------------------------------------->

3:15pm: Drive home.
<---------------------------------------------------------------------
4:15pm: Drive B to soccer practice.
--------------------------------------------------------------------->

4:30pm: Drive home.
<----------------------------------------------------------------------
6:00pm: pick up B from Soccer.
---------------------------------------------------------------------->

6:15pm: Drive to Omi’s for a wonderful home cooked meal. (THANK YOU OMI AND LISA!)
<---------------------------------------------------------------------
7:30pm: Drive home.
----------------->

I know most moms have days like this. It’s not so much the driving, but the in between that makes the mole hills into mountains. My brain was enjoying summer. My brain was in neutral. Now it is in 4th gear and it’s mad at me.

I don’t blame my brain for rebelling against me, but I know things will settle into a routine soon. I have family helping. I think I’ll just sing my brain a lullaby and hope that tomorrow the prayers I say tonight will grease its gears and prepare it for what will no doubt be another long day.

Monday, August 16, 2010

Conversation: The act of conversing BOTH ways.

(We’re getting the internet in our NEW HOME :) tomorrow. I’m looking forward to diving back into the blogging world! But I have one minute and I hijacked my husband’s work air card...I need to get this out of my brain before I fall asleep tonight.)

Today I met a new friend. Her name is Molly*. She has a boy on L’s soccer team. She talked my ear off for 30 minutes straight about her family, her extended family, her school situation, her work situation, her back to school shopping and upcoming birthdays and the like.

I probably gave her an understanding nod like 100 times.

I was there for her.

I let her talk until she ran out of breath...I’m pretty sure her lips were blue from constantly talking. Honestly, there was no oxygen inhaled during the entire length of the conversation.

But when I tried to tell her a little about me…a little teeny tiny tidbit about my life…a little information that included the words, JUVENILE DIABETES…well! I got a gasp, a look of disbelief/disgust and a “How awful.”

You know what she made me feel? She made me feel ashamed. I can’t explain it, but that was the emotion that came to the surface. I threw in a weak explanation…I know I used the word "auto-immune" and something about him having it since he was a baby…but she wouldn’t have any of it. She didn’t want to talk about it and I spent the rest of the practice nodding and validating her anger at the fact that her family wasn’t happy she brought her son with a fever to her mother’s 50th birthday party.

Poo.

Poo to you Molly.

I don’t want to be your friend anymore.

*Name changed because it's the right thing to do.

Friday, August 6, 2010

IT exists!

Hands down hardest thing a mom has to deal with? Letting go.

And a T1 mom? Forget about it! Letting go is like, mythological or something…what mother can let go and let their child handle D on their own?

I mean really! ((SNORT))

What kind of mother can do this? A stupid one? A crazy one?

Our kids need to be monitored by us ALL THE TIME!

NO LETTING GO! NO LETTING GO! NO LETTING GO! (Seriously, I think I used to chant this in my sleep…)

So how does a mother, who believes “letting go” is akin to throwing your child in a volcano…let her 12 year old diabetic son go to scout camp…alone…for an entire week?

Beats me…

But I did.

I let him go.

And. He. Lives.

The LOGICAL side of me knew he could do it.

-He has had diabetes for 12 years, and he is 12 years and 8 months old.

-He has had several dry runs. Scout camp with his father there 6 of the 8 days last year. Sleep overs, one night on his own each time. Scout camp-outs, 1 night on his own each time. Sixth grade camp, 3 nights on his own.

-All the dry runs acting as tests…all of which he passed with flying colors.

-He changes his own sets now.

-He counts his own carbs now…even when I’m there!


See! Logically…he was ready!

But mothers are not logical people. Mothers are emotional, protective, worst case scenario messes!!!

And our EMOTIONS hold our children back from being, well…self sufficient.

My emotions have held J back for many many years. I had to come to terms with the fact that this is true. Last year our endo told me, “Meri, you are doing a phenomenal job for J, but it’s J’s turn to shine. He can do this…you just have to LET him.”

So slowly this past year I have given him bits of responsibility here and there.

And slowly but surely…he was ready.

As I said good bye to him last week I wanted to run and scream towards the car with my hands waving above my head like a Muppet…begging him to get out, and stay home. But somehow I found the strength to squash down my emotions and let my logical side take over. (I KNOW! I’m like a Jedi master or something!)

I said goodbye and gave him a big hug. I looked him square in the eye and said, “You are going to be awesome this week.” I hugged him again and walked away…pushing away all the fears that were like rabid dogs trying to break down the door of my sanity.

Turns out my awesominity was rewarded in kind…J called me that night FROM HIS TENT! Turns out he got the highest campsite on the hill…and miracle upon miracle he had cell reception. On a mountain. In the wilderness. People! Do you get the enormity of this!

I’ve slept like a baby this week. J has called me to check in almost every night. He is doing PHENOMENAL!

So here I am, looking like a puffer fish because I am so proud, and marveling at how we got to this point in such a small amount of time. J starting Jr. High FREAKED me out at the beginning of the summer…

But now….he is ready. Which is nothing compared to the fact that, “I” am ready.

I never thought I would be here. I thought this place was unreachable. I thought this place was a fairytale…something irresponsible mothers bragged about.

But it exists friends! It exists!

Is he 100% on his own? HELL NO! I’ll be checking his meter…getting texts from school daily at lunch…double checking he boluses for meals…and of course, doing the 1am check for him.

This is all new ground for us. It was not easy getting here. But we are here in Big Foots proverbial lair.

He is ready. I am ready.

Letting go…it exists! It can be done, and you WILL do it someday! And when you start the process, I hope you will remember that the most neurotic, delusional, over protective mom in the blogosphere said it could be done…and I hope that will give you the strength you need to take your first baby steps towards (gulp!) letting go.

Monday, August 2, 2010

One of those moments...

There are moments in everyone’s lives that define them. Moments that move us to a sacred place…a place away from the world’s manipulations of what is supposed to be important.

I think my children’s diagnoses were three of those moments.

But since those three fateful days when my worlds as I knew them were knocked off their axis, there have been an armful of moments that just as suddenly, jarred me to my very core. Like aftershocks in the earthquake of diagnoses. In these instances my true priorities were made clear. Most of these moments lasted just seconds, but their grasping influences left imprints that forever changed the way I look at my life.

Last week I had one of those moments.

Since we were kicked out of our house for termite fumigation, we were lucky enough to house sit for my in-laws while they were on vacation. My husband had to leave unusually early for work one morning and since it was just an hour after the normal nighttime blood sugar check, he offered to check the boys before he left. (Uninterrupted sleep for the momma! Score!)

The next morning I started breakfast and was happy to see that B had finally gotten a good night sleep. It was almost nine and he was still lying peacefully in his bed. My husband called and we chatted about his morning as I scrambled the eggs. A couple minutes into the conversation I mentioned that B was still sleeping like an angel…

“Crap!”

“Crap what?” I said.

“Crap, I forgot to check the boys before I left.”

THUD.

(That was the sound of my heart dropping into my stomach.)

B had been going low almost every night that week.

…And he hadn’t been checked since 11:00pm.

…And he was still sleeping. (An hour and a half later than usual.)

I hung up on my husband, grabbed the blood sugar monitor and ran to the room. I stopped in the doorway to listen…to watch. Frozen…my mind like an ocean, the waves of emotion rolling…willing him to move with my stare.

Please move. Please breathe. Cough! Twitch! Roll over! SOMETHING!

There was nothing. He was motionless.

I walked slowly over to him, my eyes fixed on the blankets twisted around him. I sat beside him and brushed his hair away from his forehead.

It was that second. That one second. I was facing my worse fear.

But his forehead was warm. That was good, right? I don’t know. In that second his warm forehead was like angels singing…the warmth swept over my body.

And then he wrinkled his nose. Thank the good Lord above.

I checked his sugar and found him to be 52. I ran to the cupboard for some juice. And as I ran back I was hit by another thought.

What if he couldn’t drink this juice?

What if?

I gently touched the straw to his lips and he immediately puckered in his sleep…resolutely sipping.

THAT was one of those moments. The kind of moment that we see far too many times. The kind of moment that explains why I have so many gray hairs. Why must we stare our children’s mortality in the face on a daily basis? What purpose can this serve?

I honestly feel there IS a purpose. Without these kinds of moments...the world wouldn't have nearly the amount of good that it has. Once you get a glimpse out the window of what could be…the sadness of losing a child, a friend or a loved one…or once you see firsthand another human being suffer…you are changed…period. Priorities are changed, views are changed, what seemed important before just isn’t important anymore.

I hate that bad things have to happen to good people. But I firmly believe that bad things MAKE good people…the refiners fire molds us into compassionate, empathetic, appreciative human beings. Well, it does this for most people. For some people the fire doesn’t make them better, but bitter instead.

I’m not perfect people. I have flaws for days...but I do appreciate what I have. Every little thing.

I APPRECIATE the fact that my 8 year old child can play soccer.

I APPRECIATE the fact that my son is right now at scout camp…LIVING! Having an adventure without his mother hovering over him!

I APPRECIATE the fact that my oldest son can drink orange juice whenever he wants.

I APPRECIATE the fact that my 6 year pricked his finger 14 times last Friday, sporting a broad smile EVERY time!

I appreciate the little things. Because little things around here, are HUGE! Hugely. Wonderful!! And just when I am about to get absorbed in my selfish ways...WHOA! One of these moments happen and I realize I am DANG lucky to have what I do. I am completely blessed!

God bless those awful, emotional tsunami-like moments. They suck beyond measure, but they clarify what some don’t get the opportunity to see…life is too short to sweat the small stuff. The small stuff needs to be EMBRACED and celebrated!

Diabetes does that for me. It forces me to appreciate the small things, and embrace the wonderfulness of each little blessing.

When we are old…when we are ill…when life hands us crap… it is all of the little things that get us through.

A warm hug.

A sunny day.

A laughing child.

All the things money cannot buy.

I know at night, when you walk through the house to your child’s bedroom, and you see him or her sleeping…dreaming…it is that moment that brings the clarity of what is really important.

Especially when you take that second to pause…and wait for them to breathe.

Monday, July 26, 2010

We interrupt this blog…with life.

Things are moving slowly but surely on the selling/buying house thing. We are like The Little Engine That Could…chugging our way up the mountain that seems impossible to climb. We can see the summit…it is SO CLOSE. But as with most things…it isn’t a sure thing until the last minute. There are still a couple things that could go wrong.

But we keep chugging.

We think we can….We think we can…We think we can

Anyway, part of the process is we have to tent our house to get rid of a few pesky termites. So I will be away from cyber space a lot this week…my house will be full of poison while we are away to the in-laws.

I know what you are thinking, “NO MERI! Is there a computer at your in laws???”

“Why yes, dear friends, there is.”

Problem is, my lovely Sophomore Son has procrastinated and needs to finish his thesis for his Honors History class…before this Friday. Friday he leaves for scout camp…multiple camps, two he will be a councilor for, and one he will be joining in to earn some of the last requirements before his Eagle. (And yes, that was a surprise Braggy McBraggerton right hook!)

Anyway. When he comes home, we’ll be moving (hopefully,) and then school starts.

So he has dibbs on the computer at the inlaws.

:P~~~~~~~~~~~

I’m sure I’ll find some online time…but blogging probably won’t be happening this week.

:P~~~~~~~~~~~

I’m already behind on reading blogs and I feel like the world is crashing down in a wave of responsibility and worry. But we’ll make it through…we will!

I’m not even going to go into the fact that J leaves for Camp with M on Friday…and will be gone for 10 days. Nope, not even thinking about it. A girl can only take so much before she soars off the edge. And school starting, with conferences and 504 meetings, and J starting Jr. High…NOPE, not even on my mind. No siree!

AAHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!

(That was merely a mind wiping scream. I’m not thinking it about it anymore…honest.)

So until then…adieu. Much love to my peeps. May your nights be full of good numbers, sleep and happy dreams. And may your days be full of love and laughter.
(I know, I know, real life has to happen too…but a gal can send good vibes your way, can she not?)

Wednesday, July 21, 2010

Let's hear it for the boy!

Since I was a little slap happy in my last post, I thought I should tone things down a little with nothing less than a spotlight on one of my boys for his HUGE accomplishments this summer.


L!

First, and most significant, L is feeling his lows. But even more than that, he is TELLING me that he feels low. And let me tell you, Lawton isn’t happy about it. He doesn’t like the fact that L is beating him to the punch. If L tells me he is feeling low before Lawton does, Lawton doesn’t get a treat. L will come in and tell me and then go to check his sugar and Lawton will follow me to the fridge, often beating me there…waiting for his treat.

Sorry fella…

But back to L. We have spoken for what adds up to hours and hours on how he feels when his blood sugar is low. He started manifesting it by just lying on the couch and telling me his legs don’t work. Then he would say his legs felt like Jello. I would reiterate to him over and over that these are “low feelings.”

“Uh oh L! You have the LOW FEELING again! We better check to be sure!”

And sure enough his Jello legs were always spot on.

So finally he has put two and two together and has been telling me when he is starting to feel low.

Hallelujah!

He is also going into first grade next month and has been working diligently this summer on learning how to read. Turns out he is a memorizer like his mother. He doesn’t like to sound things out…he totally can…but when I ask him to sound a word out that he doesn’t know, he just looks into the air until he can pull it out of his hat. But regardless…progress is being made!

Another thing we have been working on is communication about what his blood sugar numbers means. He checks his own sugar now and earlier this summer had a hard time knowing if he was “low,” “high,” or “nice.” (I try really hard not to say good…because ALL numbers are good, but sometimes it slips out. Good is good I suppose.)

Anyhoo…he finally has the terminology now…but how he communicates it is a hoot.

He’ll say, “Oh no Mom, I hate to tell you this. It is KILLING me to tell you this…but I have to. I’m low.”

Or, “I have bad news Mom…it is just really bad news. I don’t know how it happened, I’m sure it was an accident….I’m high.”

Or, “You are going to do the happy dance Mom, I just know you are! I’m PERFECT! Ooooooooooooone hundred!!”

Or, “I’ve got good news and bad news. The good news is I’m nice. The bad news is I want a snack right now.”

Lastly we are working on what foods have carbs, and what do not. We still have a way to go with this one. But slowly but surely…progress is being made.

Brag brag bragity brag!

How can you not love this boy? My baby. He makes my day with his wonderfulness. I guess six years old isn’t technically “baby” anymore. But what ev’. He is still so cuddly and so sweet, and his fat toes are still my favorite breakfast! He’ll forever be my baby.

Monday, July 19, 2010

NUMB3RS

Wanna hear something really funny?

I’m not a numbers person.

LOL! LOL! LOL! LOL!

Ok. Maybe it’s not THAT funny.

But oh baby…I was NEVER a numbers person. Which we all know is some kind of cruel joke or something, because my life is all about numbers now.

It used to be, back in the day, when I only had two diabetics…(I know ONLY! LOL! LOL! LOL!) I didn’t need to look at their meters. I knew exactly what their blood sugars were doing when they were doing them. I would march into that endo’s office and say…”J is high every night at 10…his bgs the last few nights have been between this and this…and at lunch we are having issues with this. And L…well his last 7 wake up numbers were this this this this this this and this.”

I was borderline awesome…considering my number handicap and everything.

But now? WHOA NELLIE! Now…I don’t remember much. I’ll march into the endo’s office and say…”I don’t have the numbers to back it up, but I have a gut feeling we need to change B’s nighttime basals…I’m pretty sure I’m correcting him EVERY night. “ And a bunch of other half truths like that. They have to download the boy’s pumps before they get any reliable information. My instincts are usually right…but when asked for the reasoning behind said instincts…well, lately I just freeze up. My brain searches for the information. It scans the billions of numbers running through my head…and all I can back it up with is…”I just know.”

So last week it seemed like all the boys were running high…WAY TOO MUCH…I changed all of their basals using the VERY scientific method called “following my gut.” I obviously went too strong because we are having A LOT of lows.

So change them back! (That is what you are saying, right? You are totally thinking I should change them back…or dial them back a bit, correct??)

Well I have something to say to you…if I change them back; like any LOGICAL person would…well…I’ll be dialing them back up next week. In my experience if you get too strong on the basals, give it time, VERY soon they’ll be right on. Especially when you have three CONSTANTLY growing boys. Sometimes it just takes a little riding out before things settle.

Now don’t go running to up the basals on your kids and say that it will all work out eventually ‘cause Meri said so. I’m a stay at home mom. I check the boys every three hours or more. I have a dog people! A medical alert dog. I am vigilantly on watch! I amI am…probably going to dial them all down a bit…

Hey, a girl can change her mind!

Although we are catching the lows, that are mostly occurring mid-morning, in the 60’s and the 70’s…there is potential for worse…and I don’t tolerate lower than that. (LOL! I don’t tolerate it! That is such a joke, it gives the illusion that I actually have some control over how low they’ll go!)

Can you tell it is a quarter to midnight and I’m waiting to check B and see if the pudding I fed him brought his 68 up to a nice number?

Truth is…I do hate dialing back strong basals…because It IS true…I’ll probably be dialing them back up in a week or so…but better safe than sorry.

Sigh.

All I can do is hope that all these numbers are being stored SOMEWHERE in my swelly brain, and that my gut instinct is just a manifestation of all the calculating my subconscious is doing. You know?

You don’t know?

Me either. It’s a theory anyway.

I should start writing it all down, but who am I kidding…I never get pass day two. So I think I’m going to slap the CGM on each one for three days each and let it do the calculating for me.

Because apparently, the CGM is a numbers “person”…and he’ll be able to paint the picture more clearly than the abstract my gut is handing me.

CGM is the Monet to my guts Jackson Pollock.

See how easy I worked all this out, because I took the time to type it down on virtual paper?

HA! Numbers are stupid! Who needs numbers when you got mad blogging/problem solving skills!

Ok it has been 30 minutes, wait here…I’m going to see if my gut was right in feeding B pudding…

138

BOOYAH!

Friday, July 16, 2010

When life hands you diabetes…make friends

Today I woke up to Facebook and found status after status of blood sugar reports. Victories, defeats…works in progress. How comforting to know that in the depths of the night, D parents everywhere are tending to their children. Like little fairies, or angels, watching over the children in their sleep.

I remember a time when it never occurred to me that others were out there doing the same thing. Of course I knew there were OTHERS, but it just never crossed my mind that there were so many. Moreover, it never crossed my mind that they would be so wonderful.

Yet here I am with fully 100 friends on Facebook who I have never met, but yet complete my life in the most unlikely of ways…by just writing one or two sentences on how or what they are doing.

They are like me.

Same.

How wonderful is it to not feel alone. I can tell you that I have bloggers that I follow and chat with that I seriously consider to be some of my closest friends. Yeah, I one of THOSE people…apparently.

But I’m so Ok with it, because hello, they ARE my friends.

Here’s a little something for you to wrap your brain around:

Last week my car was broken into and among other things, 3 one touch link meters were stolen. I rely heavily on these when the boys are in school. Since my boys do not have a nurse to help them, they need to check their own blood sugars and then put the number into the pump. With these handy monitors, the numbers are beamed to the pump, so I don’t have to worry about my eight and six year olds entering numbers correctly. I posted on Facebook about the ordeal and no kidding, within an hour all three were replaced.

Hello. Talk about understanding. Talk about generosity.

These woman (and men too) know the worries of my world. True friends do.

I saw this quote:

“A friend is one who knows the song in your heart, and can sing it back to you when you have forgotten the words.”

When I lose my way…I have you. When I am down…I have you. When I want to celebrate…I have you. Blog friends, face book friends, family friends, old friends, friends who never comment but I know you are there and I love you just the same. I am so blessed.

So today I lift my Diet Pepsi up to toast the friendships I have found inside my computer.

To you:

“May the road rise up to meet you, may the wind always be at your back. May the sun shine warm upon your face, may the rains fall soft upon your fields. And until we meet, may God hold you in the palm of his hand.”
-An Irish Blessing

Cheers. :)

Monday, July 12, 2010

Still a little broken.



In a few weeks it will be 12 years we have been “working” with diabetes. When J was diagnosed I broke into a hundred pieces.

You would think that after so many years I would be healed by now.

You would think that after so many tears I would be dry by now.

But I still cry at too many songs on the radio. I still get shook up when one of the boys expresses ANY sadness about this disease. I still feel guilt when blood sugars don’t do what they should, even though I know it isn’t as much my fault as it is the diabetes itself.

I’m still a little broken.

Maybe it’s because our last diagnosis was only 3 years ago. Maybe when there is a new diagnosis it’s a do over…you start from the beginning. You need to go through all the stages of grief. But if that is true, does that mean that in time I won’t be broken anymore? That one day I’ll be ok with all of this?

Probably not.

I can’t imagine any of this ever being ok. I do imagine happiness with maybe a little peace sprinkled on top. But it will never be ok that my son puked because his tubing broke off his pump. I will never be ok with cleaning up bloody tests strips off the dresser after a long night. I will never be ok with sticking needle after needle into my boys. Finding my son limp on the couch as he declares his legs don’t work because he is low…that kind of stuff just won’t ever be ok.

It’s like I’m watching the movie of my life. It’s a happy movie…a fun comedy with the most endearing characters ever. There is action, suspense and most importantly…love. It is a fulfilling and blessed storyline. But as I watch the plot of this awesome movie unfold…it’s the background music that changes everything. The music is dramatic, with a sad undertone. All the scenes of my life take on a completely different context with diabetes in charge of the playlist.

It affects me.

It changes who I am.

I have awesome days. Days where diabetes has nothing on our family. We don’t let it win…we live! We live happily. And as time passes these days become more of our norm. Diabetes goes onto the back burner…we have control. We win the battles.

Until someone gets sick.

Or someone has a growth spirt.

Or until we eat pizza.

Or until a million different things.

Then we have to stop and remember the brokenness. We are stopped in our tracks to be reminded that diabetes is always there. It doesn’t let you live on autopilot for long…

I broke three times…and I am still standing today. That has to say something. Name anything you have broken three times…I bet it is in the trash.

I wonder if people can tell. Can they see the cracks that love has sealed back together? Is it obvious? I’m a literal patchwork quilt of cracks. I’m sure it is a little noticeable.

But I hope they don’t feel sorry for me. We are going to be ok. We ARE ok.

Not ok with how diabetes affects the boys. But ok despite how diabetes affects the boys.

Despite it all…we are still standing. Despite it all…we are still a family. Despite it all…we still love one another. Despite it all...we celebrate our blessings.

And diabetes can’t take those things away. It can take away my sense of humor sometimes, it can take away my patience sometimes, and it can certainly make me more serious about certain things…but it can’t take away the love.

And best of all…it can’t take away the hope.

Thursday, July 8, 2010

How I stay out of the looney bin...


We were swimming at a friend’s house with the cousins. Lawton was lying leisurely by the pool…watching, smiling at the kids. His eyes were intent on the action, only briefly distracted by the occasional bird that walked by.

The sun shined, and the kids giggled. A perfect day for the pool.

The boys had only been swimming for a half an hour when Lawton jumps up and goes to the edge of the pool. He walks along the edge. The kids are yelling, playing…he wants in on the fun, right?

But he paces…he paces up and down, and at one point he is ready to jump in. Our Lawton…who hates water. He would never dream of jumping in a pool…but here he was staring at J…ready to jump to him. He would glance at me every now and then looking for the Ok. I just shook my head. He knew he wasn’t allowed to jump in.

He circled the pool and J pled with me to let Lawton jump in.

“No.” I said, “No way.” It wasn’t OUR pool…I’m not an expert on pool etiquette, but I do know you don’t let the dog in unless he was invited.

But Lawton continued to ask, “Can I jump in?” Constantly looking at the pool, and then back to me.

“What is up with him…it is so not like him!”

(Yeah, I’m that dense.)

It was my visiting brother who suggested, “Maybe he’s alerting.”

Say huh?

It was all instantly made clear. I had the boys come directly to the side of the pool. Lawton sat contentedly next to me…watching the familiar check…readying himself for his treat.

J was 72.

Not dangerously low, but I submit this: I checked J's blood sugar 30 minutes earlier, before he went int the pool, and he was a comfortable 156. AND, J was in the pool for at least an hour AFTER this blood sugar check. He was dropping so fast, where would his sugar have been if we didn’t check when we did?

What if?

What if?

My boys don’t have very many bad lows.

How significant was that last sentence? I have 3 young, active, crazy diabetic boys and we RARELY have a blood sugar under 60.

Very significant.

Quite significant.

Utterly significant.

I like to take credit when the boy’s numbers are doing well…but I need to give credit where credit is due.

Lawton lets me live. He lets me be mom. I can function without the overloading worry because of him.

I can F-U-N-C-T-I-O-N!

Good boy Lala! You are such a gift!

Sunday, July 4, 2010

My Brother's Diabetic Life

Some of you that are new to my blog may not know that my older brother is Type 1.

He is 3 years older than me, and I’m proud to call him my friend. Proud, because when we were kids he was my mortal enemy. ;) We fought like cats and dogs. Fortunately, when we “grew-up” and had kids of our own, we were able to settle into a comfortable friendship. Even though we live a couple states away from each other, our kids are best friends. His family came to visit last week and Evan and I watched in awe as our kids skipped happily ahead of us arm in arm into the Six Flags entrance. If you would have told us 20 years ago that we would be witnessing such an event, we would have shook our heads and laughed hysterically.

As parents of Type 1’s, I think we all are curious about the life of adult type 1’s. It is a little peak into our children’s futures...inquiring minds want to know!

Evan was happy to be interviewed to answer some of burning questions I had about adulthood and T1.

Me: How old were you when you were diagnosed?

Evan: I was 23 years old.

Side note: (I remember the day that he was diagnosed. My mother had called me and I cried hysterically. My husband was stunned by my reaction. So was I. I had no idea what it all meant, but inside me, somewhere, I knew that THAT moment in time was an important one, and the emotions flooded into me for days.)

Me: What were your symptoms?

Evan: I lost 65 pounds in less than 4 months. My lips were insanely dry and I was constantly peeing. When I was in these stages I was splitting my time between Sonoma and Sacramento. It is a two hour drive and you bet I knew EVERY single restaurant and McDonalds on the commute that would let me use the bathroom without buying anything. I was also working at a restaurant, and they wouldn’t let me leave my station even when I had to desperately go to the bathroom. I was always parched and drank a steady flow of regular Coke, which of course, didn’t help things.

Me: So you finally went to the doctor…what happened then?

Evan: The doctors diagnosed me as a Type 2 right away, because of my age, and they gave me pills. A few months after one doctor gave me NPH to use only at night. When I moved to Taiwan to teach English I read dozens of books on diabetes and diagnosed myself as a Type 1. I prescribed myself my own insulin. Since I didn’t know better, I asked for pig insulin at first. Later I got National Healthcare in Taiwan. I found a doctor who knew what he was doing, and he put me on a new insulin regimen.

Me: Have you ever had a diabetic emergency?

Evan: When I was on the pills, I thought I was going blind. I went to the emergency room, and they just gave me more pills. I had no insurance at the time and was billed thousands of dollars for their stupidity. There was one time I was so shaky, I had to sit on the floor and I asked someone to get me a coke, but that is the extent of it.

Me: Can you tell me what it feels like to have a low blood sugar?

Evan: For me, I get the shakes. I used to get shaky when I was 70, now I don’t until I’m in the 40’s. I also have nightmares when I go low in the middle of the night. If I wake up, and I’m scared or worried, 90% of the time I’ll check and I’ll be low.

Me: What does a high blood sugar feel like?

Evan: In my case, it’s all about peeing. I know I’m high by how my bladder feels. If I’m over 260, I’ve got to pee.

Me: When and why did you start the pump?

Evan: I spoke to my doctor about a pump and he said it wasn’t an option. A few months later I got a call from my doctor to come in. Apparently you had spoken to your endo, who called my nurse to tell her a pump WAS needed. I started shortly after.

Me: I forgot I did that. I’m so awesome. It made your life better, didn’t it?

Evan: Yes. My A1C’s are about the same, but it really has made my life easier. It especially helped with the dawn phenomenon. I had awful spikes early in the morning…the pump makes those spikes controllable now. I like being able to turn the insulin off before bed if I’m dropping fast, and I especially like the meter that links to the pump. I don’t have to enter the number and it is very convenient.

Me: How often do you see your Endo?

Evan: (Smiling) Meri, I’m a little different than most of the diabetics you know. I’ve only seen an Endocrinologist like four times in my life. Three of those times were when I was starting the pump. Since I diagnosed myself…and educated myself…I mostly take care of myself. I have a standing order to get my blood drawn a couple times a year, and I take my blood pressure when I’m at the store. If my A1C’s weren’t so good, I’d probably seek out an Endo’s advice. But so far, I’ve been okay on my own.

Me: What is the biggest pain about having Type 1 Diabetes?

Evan: Driving is the biggest pain. It’s hard to multi-task while I’m driving. Just on the way down for this trip, I would poke my finger and Cheryl would squeeze out the blood and touch it to the monitor for me. Also, my immune system is pretty crappy, I’m a teacher and I get all the colds and flus that the kids bring to school. Another thing is everyone and their mother seems to know someone with Type 2. I’m always getting “advice” on how to take care of my diabetes. I’m always running into the food police too.

Me: Do your students know you are Type 1?

Evan: Yes. At the beginning of the year I show them my pump. I explain it’s not a cell phone. I tell them I may eat skittles now and then and no, they can’t have any. I also tell them if I start acting weird, or get unresponsive that they should run next door to get Mr. Fertado.

Me: Do you think you are a different person than you would have been, because you have diabetes?

Evan: Definitely. I am more cautious because of it. The biggest contributing factor for me becoming a teacher is the fact I knew I would get pretty good health insurance. Even though I am glad I choose to be a teacher, I may have chosen a different profession if health insurance wasn't such an important requirement.

Me: Is diabetes a big part of your life?

Evan: Honestly, I forget I’m diabetic half the time. Everything I do is just so automatic. The only time I complain about being diabetic is when I have to get out of bed in the middle of the night to go to the bathroom.

Me: Cheryl, does Evans diabetes play a big role in your life?

Cheryl: Not at all.

Evan: I think the biggest way I inconvenience Cheryl, is when my alarm goes off in the middle of the night. She helps me out, but generally…our life is just a normal one.


(The boys and Evan with their Minimed Pumps)

Friday, July 2, 2010

We wish we were this crafty!


Last week I won the contest on Lora's blog to celebrate her 100th post.

Let me tell ya...It pays to be a stalker. :) Comments equal love people...how many time do I have to tell you!

Friday night I came home to a package on my porch. I was like a child who just found a big box of candy on her doorstep...I'm pretty sure I giggled like a 4 year old when I saw it.

I picked it up like the treasure it was and ran to get my camera.

Dead battery. :( Boring!

So since it was late, I let the battery charge and waited until the next day.

So the next morning, I opened it up...


(Okay, she got my attention really quick...)

I carefully unwrapped the bubble wrap...



And found all kind of homemade wonderfulness inside...











Each card, tag, pen, clip...everything...made with love and care by Lora.

So what do you think? Is the woman that sent this package...our blogger friend, our face book friend, our chat friend, our wonderful real life friend...really...Martha Stewart in disguise???

I love every inch of what was made for me. I can't wait to send them out to the very special people in my life.

Thank you Lora. Your mad crafting skills AMAZE me! You are a blessing to us all!

 
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