Wednesday, August 29, 2012

Kunk

If you haven't seen the new update on Ryan, please read the link to the facebook update:  HERE.Have you ever seen the wooden marble maze game?  It is a wooden box with a curvy lined trail that a marble has to follow.  It is controlled by two dials on either side that make the wooden board rotate and swivel so the marble will, (hopefully,) go the direction you want it to.  The big catch is there are holes throughout the entire game board that the marble can fall through...If you fall through, your marble is taken back to the very beginning...Hello...the story of my life wrapped up in a wooden puzzle analogy bow.That marble...

Tuesday, August 21, 2012

Meri to teachers: Just keep them alive

I have a history of the back to school crazies.  The worry usually eats me alive.  My MO has always been:  Cry a lot, panic a lot, and then pretend in public that I don't cry a lot and panic a lot.This year I have bigger fishes to fry, so for some reason, (I think we all know the reason,) the kids at school are the last thing I'm worried about...Ok...maybe the next to last thing I'm worried about.Monday I met with L's new teacher.  He is a teacher we haven't had before, but one I'm looking forward to L having none the less.  On Sunday night I was up late in bed going over in my head what I was going to say to him.I had...

Sunday, August 19, 2012

I believe.

I'm human.And I believe in God.Both.It's not easy being human AND believing in God.  It takes a lot of guts to believe in God these days.  A lot of faith too.Ryan's diagnosis has been the hardest test of my faith yet.  And that's saying a lot.It's been almost 6 months since we were told the news and last week had to be the hardest seven days yet.  When we found out Ryan's "miracle" med wasn't working anymore the doctor sent us to UCSF to see if Ryan could get into a trial.  Turns out there are four different trials that would work for Ryan, but all are contingent on Tuesday's brain scan showing no growth in any of Ryan's...

Friday, August 17, 2012

Blogjacking revisited...

I recently went out and bought a new phone. The old one was a shenanigan seeker, and I just couldn't tolerate it anymore. Here's hoping for a successful school year with the new guy. RIP old guy...this repost of your blogjacking is a great reminder why you won't be missed... (Sorry dude. You had to g...

Sunday, August 12, 2012

This life vs. that life

I don't know how it is I'm hardwired this way...but I can write much better than I can speak.  Now, if I write a speech, or a talk of some sort...I can deliver it marvelously!  But if I'm put on the spot and need to spout a long diatribe on a subject...If I haven't written about it before...I'm lost.Confused much?Point being, when I sit down at the keyboard my thoughts flow so much easier.  I had a dear friend stay with me this weekend while Ryan and the boys were away camping.  We were up until the wee hours of the morning, talking about everything under the sun.  It was wonderful, and at the same time harder for me...

Tuesday, August 7, 2012

14 years of soaring anyway.

He's 14 years-eight months old, and he has been living with diabetes for 14 years today.He has been living with it.  And in my own way, I have been living with it.  In his own way, my husband has been living with it.  In everybody's own way, our entire family has been living with it.Here it is.  A big boring ol' Tuesday.  And today 14 years ago our lives changed in an instant.Today, there was no parade.  No fancy dinner.  No balloons.  Just a family sitting together on the couch before bedtime taking it all in.When I brought it up, everyone became very quiet.  There was a solemn respect emanating...

Sunday, August 5, 2012

Apricot Advocacy

It's almost time for Back to School.  I love summer, and I love school.What I don't love is going BACK to school.For parents of children with diabetes, going back to school means advocating...which at its core is a really amazing thing.   On the surface though, it is a super delicate thing at best.  Kind of like an apricot.In our hearts we have all the right intentions.  We want our children to go to school with a plan in place.  With safety measures signed off on, and with a staff that is trained to keep a watchful eye on our little ones.  We want our kids to be safe.  Sounds like a completely admirable...

Friday, August 3, 2012

Facebook Friday Sandwich

Wherein I smoosh today's goings on between some Facebook postings of late.Facebook Friday?Is there such a thing?  I feel like I live a double life online.  I have my life here on my blog, and I have my life over there on Facebook.  Here there are just small, (very emotional,) snapshots of my life.  Generally written in the wee hours of the morning...like now.  On Facebook I'm able to share more about the little things that light up my life. (And by little things...I mean my boys.)Take this morning's status for instance:I ask the boys to check their sugars before breakfast. J: "78! I win!" B: "No! I'm 111, that...
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